Wednesday, January 30, 2013

no chemo this week...

Hi there Team Kelly :)  To fill you in...she was supposed to have chemo last week...scheduled for one more round while her team of doctors at MD Anderson decide what to pursue next.  However, our dad was being honored by the Texas Agriculture Lifetime Leadership Foundation in Austin last Wednesday.  Soooo...we really couldn't think of a better reason to put off chemo for a week!!  It was a huge honor for him and we were so proud and happy to be there for him...way to go Dad!!  



After putting chemo off for a week, we were certain Kelly would get treatment yesterday.  But, as God shows us over and over again, we are NOT in control.  Her platelets were too low to receive treatment this week.  Nurse Tammy says there is nothing Kelly can do to change this.  There are no shots, no foods, or vitamins that can boost production of bone marrow.  We just have to wait, hope and pray.  

The frustrating part of this is all the preparation she puts into getting treatment.  She eats as well as she can and forces herself to hydrate drinking tons of water etc.  And as a mom of 4 kids...she plans for a whole week of being down and out of commission of her regular mom duties.  This means getting laundry done, meals planned, rides to practices, rides home from school, uniforms washed and ready, school lunches, and on and on.  Of course, Jason is amazing and does all of these things (with the help from all their family and friends).  However, Kelly still makes 10 lists and texts 20 people to schedule an elaborate plan for the entire week.  But then what else would you expect from the greatest mom ever?  It is a big let down when she goes to all this trouble and then can't get treatment.  Not to mention her worry of going so long without chemo.

So come on, Team Kelly!  We need some positive energy and fightin' attitude!  Let's put our rally hats on and start singing praises for Kelly's healing!  


Here are some prayer requests for this upcoming week...
1.  For her anxiety anticipating treatment next week
2.  For her bone marrow to reproduce and platelets to increase
3.  For strength and high spirits
4.  For her doctors and their decision on the next phase of treatment
5.  For friends who have reached out to her and shown her such genuine compassion and continued faithful prayers every day
6.  For jason, will, ben, sam and ella...always!
    




Monday, January 21, 2013

HOPE in the new year...


Happy New Year TEAM KELLY!!  What a wonderful way we started off the year!  God IS SO GOOD!  So you all know Kelly's amazing report from MD Anderson, but let me share a little leading up to the actual trip to Houston.  Trisha's mom...aka Nana Gains, paid a little visit to Kelly the week before.  She had been reading her Jesus Calling devotion and something stood out to her.  
-Hope is like a golden cord connecting you to heaven.  The more you cling to this cord, the more I bear the weight of your burdens, thus you are lightened-
Nana has kept a gold piece of cord for years that her mother-in-law had given to her...just a piece of gift wrap or craft ribbon.  It had stayed nestled in a junk drawer for years.  Numerous times, Nana had thought of throwing it out.  For whatever reason, it just kept repositioning itself in that little junk drawer over the years.  While Nana was praying for Kelly that morning, and read that passage from Jesus Calling, she immediately went to find that little piece of gold cord hidden in her junk drawer.  She called Kelly right away and drove it over to her.  Being the teacher that she is, she knew this little scrap of gold cord would give Kelly a visual every day of the Hope we all have in her healing and how all that Hope connects us to our Father in Heaven.  The best part of this story is that God had spoken to Nana Gains that morning.  He told her loud and clear..."Tell Kelly that I AM LISTENING!"  We hope you have the chills and tears that we all had at this amazing testimony. 

So as we traveled to Houston, clutching onto a little piece of gold cord from Nana Gains, we knew God was going to give us some wonderful news of HOPE that would keep us fighting!  He reassured us that He is the ultimate physician.  Kelly IS an EXCEPTION! This is another text she sent for me to put on the blog while driving home from Houston -- 
Why are we always in awe of Him?!  He can do anything!!  He has big plans for me and I'm ready!!  I just can't stop wondering...why me??  What does He want to use me for?  It's amazing how good news and God's love can make you feel so strong!!  How we keep praying circles...and He listens.  I am so blessed it overwhelms me.  I'm ready to celebrate and to fight some more!!  
Gonna hold tight to that gold cord of Hope.

I was fortunate enough to actually go this time to Houston with Kelly and Jason.  I couldn't be more grateful.  God opened my eyes to just how hard it is to wait for hours and hours before getting a scan.    All this waiting and anticipation as to what they may see or not see is really taxing on the spirit.  Kelly has told me how depressing the waiting room is...tons of patients spilling over to overflow waiting rooms.  Wondering who has what kind of cancer.  Who has a wig on is one of the games you play in your mind.  How anxiety and fatigue get the best of you in those hours.  She never could have described it the way you actually see it when you are there.  MD Anderson is an amazing hospital.  A city in its own right.  But it is not the happiest place on earth.  At least until you meet with the doctor and he shows you scans that don't add up.  Until he tells you that you are an exception.  Until he says we don't know what to do with you...you are very tricky, not typical of what we see in cases like yours.  Until he says he wants to meet with a TEAM of doctors to discuss the best plan for your treatment!  And there you have it, TEAM KELLY, she is and always has been a unique child of God and He IS answering our prayers!  

A really wonderful surprise while we were there was running into Pat...a long time friend battling ovarian cancer.  What are the odds to be in the waiting room on the same day and time?    Maybe it was God's gift to Kelly and Pat to say they have each others' backs in prayer.  And God's little gift to me that week was sweet Aunt Sherryl and my dear friend Jamie.  Thank you both for inviting me into your homes so I could be there with Kelly during this time.

This is a book published by one of Kelly's favorite third graders...love it Griffin!

  









God's little reminder not to worry and have HOPE 
at the MDA gift shop :)

The amazing gingerbread house village created by 
various charities for the children at MDA.





And how amazing is this??  This is from our long time family friends who took a trip to Israel while we were all in Houston...

Something that can make your heart flutter.....When we left town, my 53 year old cousin, Kim, whom we have also been praying for...because her liver transplant was being taken over by the HEP-C that had destroyed her original.....and she was really looking at death again.  When we returned, we found that the experimental drugs were working "big time" and she was virtually clear again!  I want to cry for joy and shout to the world what our God can do!...but...my thoughts were also on you and your family knowing how much we love and appreciate you all...and we were only hoping this picture would show that.  And then...comes the WOW results from MD Anderson!


Our love and prayers to Kelly, from the 
Wailing Wall in Jerusalem, Israel.
Alicia, Koleda, Patty, Joseph, Lindsey, Michael, Daniel, Joshua, Quendy, and Gene...each wrote a prayer for Kelly on note paper, and put them into the cracks of the wailing wall!
A little background on the "antics"...It is tradition that prayers are written on a piece of paper, folded, placed in the cracks of the Wailing Wall...then periodically, they are collected, burned...and the smoke of the fire takes the prayers up to our Lord.  Yeah, yeah...we all knew that God hears our silent prayers...but doing the little bit of extra effort made us feel like we were a little more serious about what we were asking for!!
It was truly a magnificent trip and we want you and yours to know that you are loved by the Swaithes Clan!!!


Team Kelly, you are a pillar of strength for Kelly and all of her family.  Thank you for your constant prayers.  We look forward to the year ahead and what God has in store for us next!







Thursday, January 10, 2013

MD Anderson results...


God is so good!  Here is a text Kelly just sent for me to post on the blog...

Good news from MD Anderson.  Dr. Javle and his team of doctors are extremely surprised and pleased at my results.  There are no new lesions or tumors.  Nothing is visible on the liver.  The tumor on the pancreas is still getting smaller.  And my tumor marker is in normal range...22!  Looking back from where I started a year ago, he was truly amazed.  I am an exception!  He said 90% of stage 4 pancreatic patients like me don't make it a year!  Tears are flowing right now!!  What to do next is the big question???  They are not sure because my case is so unique.  Dr. Javle and his team are going to meet all together to discuss new options for me.  It could be to continue the chemo I'm on, or it could be a maintenance oral chemo.  He said to go ahead with one more treatment while they are trying to figure out what is best for me.  I am overwhelmed with God's grace right now.  Thankful for the past year.  Thankful for HOPE.  Thankful for your prayers.  I am so very blessed.








Sunday, January 6, 2013

MD Anderson this week!

Hi Team Kelly :)  We hope you had a blessed Christmas!  We certainly did!  Kelly did receive treatment since the last post.  And WOW did He hear our prayers!  She still had the tough 2 days with the drip, but bounced back so much more quickly.  They gave Kelly some hydration with the chemo this time.  That seemed to make a big difference.  At least that's what we attributed it to for a couple days.  Thinking back after that week, we figured out that it was our amazing Father answering our SCREAMING prayers!! Funny how we pray and pray and when He answers, we completely miss it, assuming it was only because we tried something new.  Thank You Jesus!

Because of these answered prayers, Kelly had almost a week to get everything ready for Christmas.  Not to say she didn't have an army of happy little elves helping her out, but she was grateful to pull it together herself!  The Stewart family had the same old typical last minute, crazy, fast and frenzy filled Christmas season as usual.  Scooter the Elf and (his little Nutcracker friend) made all kinds of crazy appearances...she went to class parties...went to her annual SGHS girls ornament exchange...went to her Gunstream gals secret santa night...saw the Nutcracker with Ella...forgot to fill the advent calendar several days ;) ...bought and wrapped gifts on December 23rd... spent Christmas Eve at the Prewitt's...spent Christmas Day at the Stewarts.  So. Very. Crazy. Normal.  What a blessing!! She has loved every single minute this past couple weeks with her friends and family.  God is so good.


Sam's Birthday Bash




sweet Lucia


scooter and his nutcracker friend in the 
american girl doll bunk beds

loving their Santa gifts
 

scooter dunks it! 

 The Nutcracker at Fort Worth Bass Hall


cake balls for the best nurses EVER!

scooter strikes again...mustaches on the boys picture

at the deer lease...




SGHS girls...
Shara, Brandie, Kristen, Malinda, Tammy, Amy, Robin and Kelly 

Sam and his teachers 

FB encouragement from Kevin



carson and his pine cove camp crew supportin' TK

Kai making leaf angels for TK :)

The Thomas girls at Universal Studios

LeAnn on the slopes


sweet gift from cousin Carla 


Shara's text picture of rainbows and prayers
 

another encouraging text from Kristie
  

from Andrew :)

Kyle's christmas and TK cookies for Santa!

an anonymous surprise in the mail

beautiful necklace from Dana

cole and carol at cole's baptism...his decision was made this summer at camp with his Aunt Kelly

some christmas letters from the kids and jason...






 Merry Christmas 

and Happy New Year!
 

My amazing sister told me that she almost feels lucky to have this disease.  Can you imagine?  She said not everyone gets the privilege to see so much compassion and generosity first hand.  God's pure love pours right into her through all of your kindness, encouragement and faithful prayers.  

Please pray for Kelly and Jason this week as they travel to Houston.  She has a scan Wednesday evening at MD Anderson, and her appointment with Dr. Javle is on Thursday.  

Much love to you all, Team Kelly!